So, I went to a second eye doctor appointment after work today and apparently I have a disease, or a condition, or disorder, or whatever you want to call it.
Keratoconus, or KC. A “thinning disorder of the cornea in which the normally round, spherical shape of the cornea is distorted and a cone-like bulge develops, resulting in significant visual impairment.”
Ew.
They don’t know what causes it, it could stop at any time, or not. At this stage, it is mostly correctable with glasses or contacts, but in 10 years… maybe not so much. Thankfully, I only have it in my right eye.
I might need to go to contacts to get better correction (eyeglasses haven’t been able to totally do the job up until now), but I would have to get two different kinds of contacts, one for each eye. The left, fairly normal soft contacts for a slight astigmatism, the right, a complex (and expensive) hybrid lens. The total was something like $400/year.
One of my favorite things about going to a new eye doctor is I can tell when they notice my disimilar pupil sizes. They usually pause in mid-sentence, their eyes dart back and forth between my eyes, and they sort of nervously ask with tangible hope, “Did the technician put drops in one of your eyes?” I then get to be the reassuring voice, and tell them it’s okay, I was born that way, it’s not brain damage or anything.
But, somewhat ironically, the same eye with the abnormally dilating pupil also has this cornea disorder. But the two things are likely unrelated, or so says the experts. My guess is something went wrong with the right eye recipe when I was being percolated in-utero.
So… something to look forward to: the possible enventual uselessness of my right eye, possibly leading to a corneal transplant or something. Hopefully, the left will hang in there. I might start learning braille in the meantime, just in case.
Lyzosy was diagnosed with keratoconus and last year she went to the eye doctor and they completely changed their tune and said she hadn’t had it. Go figure.
That actually doesn’t surprise me too awful much. I’ve gotten a somewhat different diagnosis from every eye doctor I’ve gone to.
But historically, I’ve gone to Lenscrafter-type people. Last year, I went to Colony Square Eye Care (at‘s suggestion, and they documented this screwed-up cornea thing, but didn’t explain that it was the KC business (their machine failed when trying to read my eye’s curvature).
This doctor had some sort of machine (I had to go to the inconveniently located branch where they had the machine) that confirmed the diagnosis. I guess I should say “confirmed”. We’ll see what they say next year.
I dunno. I’m not going to worry my pretty little head about it. As long as I can see well enough to read, I’m good. And there’s always audio-books if I can’t.
I’ll read to you when we’re old and you can bake me sugar-free diabetes desserts…and rub my feet.
Seriously, do you wear a medical alert bracelet? A paramedic or ER doctor could end up chasing a non existant head injury if you were in a car wreck (or plumbing accident.)
I would, but I just hate bracelets.
Plus, it wouldn’t hurt to doublecheck my head for damage. There might be some. After all, one of my favorite movies is Joe Vs. The Volcano, and most people think I’m crazy when I tell them that.
You could have the bracelet tattooed on.
My friend has KC and has collected a great deal of information about it; if you’re interested, I’m sure he’d be happy to talk to you about it.
Perhaps I will wander over to his journal at some point. Thanks.
Yikes! Snags in life’s steady march to… somewhere… are never fun. But not getting worked up about it is probably the best thing you can do. Here’s to it never progressing! /clink/